I’m not broken (Findings, part IV)

By identifying with having an injury instead of a disability, Melanie sees her limitations as something she can overcome. In her perspective, injury is less permanent than disability, and she feels more in control of her situation if she doesn’t consider her condition a disability.

It’s interesting that Melanie’s account, as well other participants’ stories, eschews the label of disability.

I’m a big believer in “to each his/her own,” but isn’t that kind of ableist thinking – precisely counter-supportive of people who have experienced medical hardships like our own?

It’s communicating a negative perspective of disability, at the very least.

My brain injury survivor participants view disability as a fixed and static identity marker that makes a person “broken,” when they have semi-permanent and permanent disabilities themselves.

Research, on the other hand, suggests a more dynamic understanding of disability than my participants do: that it’s flexible, performative, and (re)defined through our activities every day(Davis, 2013; Lindemann, & Cherney, 2008).

Dissociating from disability, then, is not only ableist, but also dis-empowering to those who do have a disability.

It’s interesting that six of the seven participants empower themselves by shunning the disability label, effectively looking down on others and what it means to have a disability.

What are your thoughts?

Melanie’s story echoes Sarah’s experiences dissociating between injury and disability. Sarah expresses:

“A lot of people don’t understand.  What I hear most is ‘Oh, you look fine.  You’re not suffering from an injury or disability.’

“I think people mean it as a compliment or to somehow tell me that – well, I look good…

“And really that is just the most frustrating thing because brain injuries are invisible, and people forget that it’s not something I’m ever going to get over. In my mind, it’s not a disability, but it is a permanent injury.”

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