I’m not broken (Findings, part I)

“I‟m not buying in to the potential of full recovery.  This is who I am now,” Peggy tells me, firmly.

“Doctors like to tell me this and that, and I just roll my eyes because I don’t believe them.”

Peggy’s recovery has been littered with different diagnoses, but she no longer clings to them for understanding her brain injury physically or emotionally.

Although doctors label her permanent physical weakness a disability, she doesn’t label herself that way.

In 14 of the 16 meetings I had, brain injury survivors mentioned categorizing themselves as something other than “disabled,” even though the cognitive and/or physical effects of their brain injuries technically place them into a “disability” category.

Instead they use variations of the term “injury” to describe their cognitive and physical deficits.

I’m all for people choosing their own construction of identity and choosing our own labels, but what do brain injury survivors achieve by shunning the term “disability”?

Is it possible we’re creating another form of discrimination – brain injury survivors vs. “disability”? Don’t you think, if anything, we should be each other’s support, each other’s people?

Just food for thought, I suppose. How do you label your brain injury and residual side-effects?


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