Where’s the social support? (Findings, part I)

“I lost everyone because of my brain injury,” Rachel tells me.

She repeats it: “Everyone.”

Rachel suffered a minor ABI that went undiagnosed for six months, and consequently, she now lives with impaired memory, fatigue, weakness, and a detached sense of self.

She also “lost all [her] friends and family in the process of dealing with the brain injury.”

Many of us have experienced difficulty in receiving the the right type of social support from others following our injuries. You know how it is – it’s hard to find people who actually get it.

It’s hard to describe it any  other way than that.

We all just want to receive social support that promotes healthy physical and emotional recovery from brain injury.  While family and friends are good resources for social support, their care can fall short sometimes.

Or they can disappear altogether, like they did for Rachel.

The brain injury survivors I met at SBIF (the local brain injury support group) described a difficulty in receiving immediate support from SBIF’s meetings.  Floyd (2014) characterizes immediacy as the actions that decrease psychological differences and distance between individuals, emphasizing similarity and increasing their ability to relate.

SBIF’s meetings just don’t offer that. To anybody I met there.

What’s been your best experience with social support? Your worst experience?


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